SCID ردیف

SCID ROW

MY DISEASE IS as rare as it is famous. It’s a form of Severe Combined Immunodeficiency, but you know it as “bubble baby disease.” Basically, I’m allergic to the world. Anything can trigger a bout of sickness. It could be the chemicals in the cleaner used to wipe the table that I just touched. It could be someone’s perfume. It could be the exotic spice in the food I just ate. It could be one, or all, or none of these things, or something else entirely. No one knows the triggers, but everyone knows the consequences. According to my mom I almost died as an infant. And so I stay on SCID row. I don’t leave my house, have never left my house in 17 years.

Daily health log.

Patient name: Madeleine Whittier.

Date: May 2 caretaker Dr. Pauline Whittier.

Breaths per minute: 8 AM 10, 10 AM 10, noon 10, 2 PM 10, and pretty much 10 the rest of the day.

Room temperature: 8 AM 72, 10 AM 72, noon 72, 2 PM 72 and base rate stated 72.

Air filter status: 8 AM okay, 9 AM okay, 10 AM okay, 11 AM okay, 12 PM okay, 1 PM okay, 2 PM okay and it’s okay the rest of the day.